Now YOU can contribute to scientific discoveries related to Turner syndrome from the comfort of your own computer!

 

The Turner Syndrome Research Registry is a database specifically dedicated to Turner syndrome research. It is the only registry that allows the information stored there to be shared with many research teams for years to come. 

 

TSS selected the registry system called PEER (Platform for Engaging Everyone Responsibly), because we feel strongly that the information you provide to one researcher should be available to other researchers within the TS research community, if you wish to share it.

The TS Research Registry will be the central, private, and secure platform for collecting Turner syndrome-related health care information.  

It is a secure and efficient way for researchers to connect with you or your data in hopes of gaining new insights or developing future treatments. 

 

 

If you have any questions about the registry, please feel free to call us at 800-365-9944, and we'll be happy to help.