Turner syndrome is considered a rare disease and therefore not widely known by the general population. Additionally, TS is variable and sometimes difficult to understand. Even some healthcare providers only know of TS by a truncated definition, if at all. Awareness efforts are invaluable. Just a few words could change how a doctor treats the next patient or reach a shocked parent, full of questions. Here you will find some ideas and tools to get you going!
What Can YOU Do?
- host a social event
- plan a fundraiser
- organize a Chasing Butterflies Walk for Turner Syndrome
- give your doctor the Clinical Practice Guideline
- see if friends and family have any questions for you
- wear a Turner Syndrome Society shirt
- display other items from the online store!
- reach out to local media outlets
- represent the Turner Syndrome Society at a health fair
- pass out our informational cards and bookmarks
- share our posts in social media
- make a video
- make sure textbooks that mention TS are up to date
Downloadable Resources
Turner Syndrome Awareness Resources